Jamie’s Smiles

An endowment fund dedicated to
helping special needs children


 

Christmas Giving 2011

 

 

Dear Friends:

 

This is Jamie’s Smiles’ 7th year adopting families through the Macomb Infant Preschool Program (MIPP). Winter is closing in and as frost turns to snow, we need to think of those with less than ourselves. The families that we seek out every year desperately need our help! Their kids have no coats, they are sick, and hungry for knowledge and food…

 

This year we have chosen to adopt the following deserving families with children with special needs:

 

FAMILY #1

Single Mom, Alica, is 25 years old. She has twin children with special needs.  Her son, Demondrae (age 21 months), has a tracheotomy, is on a ventilator and has a G-tube for feeding.  If he gets too overwarm he also has seizures.  Her daughter, Cameron (age 21 months), is significantly developmentally delayed, has eczema and reflux. Both children were born at 24 weeks gestation and lived in the Neonatal Intensive Care Unit (NICU) for five months.  At birth, Demondrae was 1lb. 8 oz. and Cameron was 1lb. 4oz.

Both children have had laser eye and heart surgery.  One week after being released from the hospital, Demondrae experienced extreme difficulty in breathing at home and was aspirating his feedings.  Mom took him back to a hospital where he received a tracheotomy after another month’s stay.  The children require such intense care that nurses come four times a week to assist.

Alicia would like to work outside of the home, but because she is s single parent and her children require such substantial care, she cannot work at this time.  In addition to being a devoted full-time mother, Alicia had to move recently because her basement flooded and her landlord would not repair or replace any of the water damaged clothing and other items or areas of the house’s basement.  The water also destroyed the wash and dryer that she owned.  She could not stay in the damaged house because both children have asthma and the water damage has created dangerous mold.  They moved with Alicia’s Mom, Kim (Grandma), to a new house.  Grandma is emotionally supportive, but she is on a fixed income and can only help so much.  They have no other family in the area.  The children’s father has not been involved with them since before birth.

Kids Need: Food, winter coats, pajamas, winter clothing, shoes, socks, boots, hats, gloves, diapers, bedding/sheets, books and toys

Mom & Grandma Need: Food, a winter coat, winter clothes, bedding, shoes, boots, hat, gloves, bedding/sheets

 

 

FAMILY #2
Alketa and her husband, Ardian, have three daughters named Amber (age 10), Alsia (age 8) and Aly (age 1 year). Aly was very premature and was born at 4 months gestation.  She also suffered a Brachial Plexus injury during birth which is the severing of some nerves in the underarm at birth.  This has caused her to develop Erb’s Palsy which is a partial paralysis of the upper arm.  She has about 50 percent use of her right upper extremity.  She also suffered intraventricular hemorrhage at or around the time of her birth.  According to Wikipedia,

“This type of hemorrhage is particularly common in infants, especially premature infants or those of very low birth weight. The cause of IVH in premature infants, unlike that in older infants, children or adults, is rarely due to trauma. Instead it is thought to result from changes in perfusion of the delicate cellular structures that are present in the growing brain, augmented by the immaturity of the cerebral circulatory system, which is especially vulnerable to hypoxic ischemic encephalopathy. The lack of blood flow results in cell death and subsequent breakdown of the blood vessel walls, leading to bleeding. While this bleeding can result in further injury, it is itself a marker for injury that has already occurred. Most intraventricular hemorrhages occur in the first 72 hours after birth….”

Wikipedia goes on to say that IVH has a high mortality rate associated with it.  Aly is very small for her age and suffers from failure to thrive.  Mom spends much of every day trying to get Aly to eat. Aly is developmentally delayed in her gross motor skills. 

 

This family was originally from Albania and moved to the United States about five years ago.  Dad works at McDonalds.  He is a very hard worker and takes as many shifts as he is allowed.  His hours vary weekly and on slow days he gets sent home.  Dad attends night classes to improve his English and his prospects for better employment.  Mom stays at home to take care of her three daughters and is studying to take her citizenship exam.  The family lives in an apartment and lives very frugally, but works hard to keep their home neat and their finances in order. Dad has expressed sadness over not being able to better provide for his family, but everything goes to living expenses and they will not live beyond their means.

 

Kids Need: Food, winter coats, pajamas, winter clothing, shoes, socks, boots, hats, gloves, diapers, bedding/sheets, books and toys

Mom & Dad Need: Food, a winter coat, winter clothes, shoes, boots, hat, gloves, bedding/sheets

 

 

FAMILY #3
Sherri and her husband, Daniel Sr., have one son named Daniel, Jr. (age 18 months). Daniel, Jr.’s nickname is “Danno” and he was born as a breech birth after a very quick labor (45 minutes) with the umbilical cord wrapped around his neck.  After birth he was hospitalized for three weeks with sever jaundice and asthma.  He still receives daily asthma treatments and his daily activities are impaired by it.  Danno is developmentally delayed and continues to have feeding problems including difficulty swallowing and chocking on his food.  He also has difficulty in controlling his arms and head or in holding himself steady.  Mom cannot work until he can do more for himself and his asthma stabilizes.

 

This family is living in an apartment.  Dad works in the building industry and at home repair services, but his hours are inconsistent (sometimes as little as one shift per week) which makes financial planning very difficult.  The family lives very frugally and takes the bus since they do not own a car, but cannot make ends meet and have had difficulty in paying their heating bills.

 

Danno Needs: Food, winter coats, pajamas, winter clothing, shoes, socks, boots, hats, gloves, diapers, bedding/sheets, books and toys

Mom & Dad Needs: Food, a winter coat, winter clothes, bedding, shoes, boots, hat, gloves, bedding/sheets

 

 

Even with another rough economic year upon us, we ask you to consider how much worse it could be if your child or children were sick and you had economic hardships.  As Christmas approaches and we all tend to take inventory of how much we have, both financially and in our family/friend support system, we ask you to take a moment and consider helping others as well. Whether you can donate $5 or $1,000, we will put it to the best use we can and the value that our combined funds and efforts can have to others less fortunate than ourselves is tremendous.  We pool all of the funds and meet as many of the needs of these families as possible.

 

Kohl's on 26 Mile Road in Shelby Township, generously gives us significant discounts on the merchandise that we purchase in their store. As a result, everything bought at Kohl's cost pennies on the dollar. Last year they also made a $500 contribution and they helped to wrap the gifts for our families. They have agreed to help out again this year! 

 

Additionally, we have other vendors that give us discounts or contributions and contribute yearly because they care. If we have more money than we need for these three families, we will adopt more families or provide food and clothing gift cards to them, as there are many others in need as we had to turn some down this year and we heard there are even more still coming forward to ask for assistance.


Also, because we ask that checks be made payable to the memorial fund at the Shelby Community Foundation: SCF - Jamie's Smiles (Christmas) your contribution is tax deductible (please speak with a tax professional for details).
If you prefer you can also contribute items, but these will not be tax deductible. We also take gently used, newly washed children’s coats in any size as there are many children in need of a warm winter coat in MIPP.


Time is flying by!  We need to make our delivery to these families THE BEGINNING OF DECEMBER!
 


If you are interested, please email your commitment to info@JamiesSmiles.org and send your check made out to SCF – Jamie’s Smiles (Christmas) to: PO Box 183181, Shelby Twp., MI 48318 as soon as possible so that we know what kind of funding we have to work with this year. It is cold!  So we get the coats, hats and gloves to our families as soon as we can and would like to deliver the rest of the items the beginning of December.  But we need to know what our budget will be, so please send your check or make your commitment as soon as possible!

 

Thank you again! If you have any questions, please call us at 586/909-5305 or you can visit us on the web at www.JamiesSmiles.org.


We are also in great need of new or left over Christmas wrapping paper.


Thank you for time and consideration!

The Bates Family & Jamie’s Smiles
(Mark, Gretchen, Logan & Sidney)

 

PS By way of background for those of you who are new to the invitation (please bear with me if you have seen this information before), for seven years we have championed adopting families of special needs children through MIPP. This is the organization that gave Jameson such phenomenal care and therapy while he was with us. We choose needy families with children with special needs who need a "hand up." Often, people as lucky as ourselves, do not realize the financial, physical and emotional burden of raising special children. They are incredible! They are worth it! But fiscally speaking, they can set you back so that you can never recover. In the 19 months that we had Jamie, his care cost approximately $40,000 out of pocket and we had EXCELLENT insurance. You can imagine what it does to people with lesser insurance and with the loss of jobs in our state and the economy being so awful... Anyhow, we try to help mitigate some of these costs for a couple of families per year...... Please join us in making a difference in these people’s lives...

 

 

 

 

 



Jamie’s Smiles is a charitable fund held and administered by the Shelby Community Foundation
PO Box 183181, Shelby Township, MI  48318 – Phone: 586/909-5305

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