Christmas Giving
2006 Update
For 2006, we came to you with the story of two families in need of help. Following are
brief reminders of their stories:
Family one
was made up
of three people – Mom, Dad & Ethan. Ethan is a 17 month old little boy who
is developmentally delayed and has been diagnosed with leukemia.
Mom does not work as Ethan needs special care and should avoid exposure
to “outside germs” whenever possible due to the medications he is on.
Ethan has numerous appointments for chemotherapy, therapy and general
doctor visits. Ethan’s father is working as many hours as he can get
through a temporary agency due to the poor job market. They got
rid of their family dog because they could not afford
to feed and properly care for a pet. They needed jackets,
shoes, boots, clothes, general clothing, food and gas cards.
The second family was
made up of four people – Mom, Dad, Gage (5 years old) and Kelsi (2 years
old). Kelsi had a heart transplant at one month of age and is on an immunosuppressant
to prevent rejection of the new heart. As a
result, she has to be isolated from as many germs as possible. She
can only leave her home for doctors’ appointments and Mom quit working
to tend to her medical needs . She has been diagnosed with
Pfeifffer’s syndrome (a yahoo search yielded the medical basics listed
below if you are interested) and her medical problems keep her confined
to her home. Gage has severe allergies and Mom also needs to be
available for emergency situations at school. They needed jackets and outerwear, boots, shoes, clothes,
food and gas cards.
I am pleased to inform you that thanks to the generosity
of people like you, we raised over $1,700.00 to help these families! We adopted
two families and gave a third family a gift card toward food. Here is
how we spent your kind donations:
Ø
Snow suits for each of
the 3 children
Ø
A pair of shoes for each of
the 3 children
Ø
A pair of boots for each of
the 3 children
Ø
2 pair of pajamas for
each of the 3 children
Ø
Hats and gloves for each of
the 3 children
Ø
Socks for Ethan & Gage
Ø
Underwear for Kelsi
Ø
Crib Sheets
Ø
13 educational toys between
the 3 children
Ø
10 outfits for Ethan
Ø
8 outfits each for Kelsi and
Gage
Ø
Books for each of the 3 children
Ø
Clothing for Ethan’s parents
Ø
Coats for Kelsi & Gage’s
parents
Ø
Hats, scarves & Gloves
for each of the parents
Ø
Over $550.00 in food, diapers
and gift cards for these items
Ø
$125.00 in gift cards for gas
And even more items were
donated already wrapped or used
for the use of our families. Thank you for helping! And if you
were unable to help for Christmas 2006, please keep us in mind for next year! We adopt families every year between Thanksgiving and Christmas.
ADDITIONAL INFORMATION
What is Pfeiffer Syndrome?
Pfeiffer Syndrome (first reported in 1964)
is a condition resulting from premature fusion of the sutures of the
skull and deformity of the skull. Characteristics include:
-
skull is prematurely fused and unable
to grow normally (craniosynostosis)
-
bulging wide-set eyes due to shallow
eye sockets (occular proptosis)
-
underdevelopment of the midface
-
broad, short thumbs and big toes
-
possible webbing of the hands and feet
Why did this happen?
There is no link between anything the
mother did or did not do while she was pregnant and the occurrence of
Pfeiffer Syndrome. Doctors believe it is caused by changes in the gene
(FGFR 1 & FGFR 2) mapped to chromosome's 8 and 10. The cause of the
change is not currently known.
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